Tuesday, November 10, 2009

We're back!

I'm back with a computer.. and with more pictures.  First I want to update you about our doctor's appointment.
GOOD NEWS: The ENT checked his ears and said he does NOT have an ear infection!
BAD NEWS:  She said he is probably pulling at his ears because his teeth hurt.  She said all babies usually get earaches when they are teething.
SO that means our next task is to go see a pediatric dentist and get his mouth straightened out!  Now THAT is going to be a difficult task.
She also said that he has a viral infection and that is causing all the excess secretions.  So she changed out his trach to a bigger sized one.  She said that might help the noise and help him be able to get the secretions up better.  So far so good.  He sounds a little bit better, but still has a ton of snot from his nose and still making snot bubbles like crazy.  Which is somewhat a good thing because she said he has a "leak" around the trach and that means he can get some air out through his nose and mouth.  And that mean sometimes we will be able to hear him cry a little (when he cries really hard).
So, that is where we stand right now.  If we could get rid of this cold we might be able to one day get back to a normal life!!  That would be awesome.  Here is the little man... I know it's a lot but it's been a while since I've had a computer so I have a lot of pictures!!

Little man... so appropriate.  That is what I always call him.  I love this onesie.

This is him before his bath.  A  HOT  MESS.

And this is after his bath.  Talk about exhausted.

Daddy wanted him to have a "walker" so he can exercise his legs.  So we got him his first car.  He doesn't hate it... but he's not sure about it and his feet barely touch the ground so he can't move around himself yet, but we're working on it.  And he LOVES to ride monkey around on the back.

His jumper-roo.  He's not sure about this one yet either.  But we are gradually getting used to all of these "new" toys.

This was at bath time.  We were trying to take the bandages off of his arms and he locked his fingers together.  There was NO getting them undone, either.  He was boycotting dressing change.

"Mommy's gonna get him..."  I love when i can kiss his bare skin.  We don't get to do that too often (Ahh, the little things).  I think he likes it too.

One more funny story before I end....
Today when we went to the doctor, we were getting on the elevator and this old lady was staring (as people ALWAYS do when we go out) and after staring for about 2 minutes, she says "Did he fall?"
I said, "Excuse me?"
She said it again really quiet, "Did he fall??"
I said, "No, he has a rare skin disease."
She said, "Oh, ok.  Well you know how babies always fall out of their infant seats..."
And I WANTED to say, "Yeah lady, he fell head first out of his infant seat and scraped up BOTH cheeks." Ha.
Next time I'm gonna tell someone who asks, "Yeah, I dropped him."  And see what they say.
No, really... all joking aside, it doesn't bother me at all when people stare.  I am more than willing to let them know what's going on.  It's just when people say silly things like that... that makes me laugh.
I'll write again soon!  Thanks so much for all the prayers and all the support!  It is truly appreciated!!
God Bless!

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