Monday, April 12, 2010

Tube Surgery

Hey guys.  We saw the ENT on Friday to check his ears.  Dr. Rodriquez said that there is fluid there.  It's not infected, but it's causing him pain because of the pressure.  She said we could either go ahead and put the tubes in or spend the next few years wondering if we should put them in or not.  So we made the decision and scheduled the tubes for this Wednesday.

Also, she looked down his trach and said that the little sore that he had there before from the longer trach that was in has gotten bigger and that's why we've been having some trouble with the trach.  He's having trouble getting air in because the sore is restricting his airway more.  So she started him back on the higher dose of steroids and tapering them down again.  Hoping that will help shrink down the sore.  I'm also giving him nebulized steroids to see if that will help as well.  We are going to go back tomorrow and let her check the sore again to see if it went down at all before we bring him into surgery.  She said he can't go in to surgery breathing like he was because the anesthesia team would have a heart attack!

But he's such a little trooper.  You would never know by the way he acts that he was struggling to breathe.  He's still all smiles.  But he is pulling at those ears so much that he's tearing up the sides of his face.  Hopefully the tubes will make a world of difference and he won't be pulling at those ears.  The surgery starts at 8.  We have to be at the hospital for 7.  So please say some extra prayers for him on Wednesday morning.  I will try and let you know how everything goes with his trach tomorrow after our doctor's appointment and let you know if the surgery is still going to happen for sure.

Also, he was supposed to have an appointment tomorrow to take his contact out and either leave it out if it's healed or switch it out with a new one.  Well, don't you dare think I'm going to put him through two traumatic events in one week... SO I called the eye doctor and she said that they could change it out (or check and see if it's healed) while he's under anesthesia so that it won't be as traumatic for him.  Killing two birds with one stone... I know, so smart :)

SO, please give offer up some extra prayers for the little man this week :) It's gonna be a rough one.

I'll let you know how things go!! Thanks again for all your love and support!
Here's some pics :)














Pick a toy, any toy...




Bye, Bye!!



Love, 

Brief weekend recap.

There was no time for sleeping this weekend. We were busy, busy busy. But, a pile full of pillows + your trusty pair of pliers, are a super combo for relaxing after a long day's work.

As you can see by the safari hat, we were off to the zoo. On of our favorite frequently visited spots.

The spring foilage was absolutely gorgeous. I wish we had a nicer camera and a cooperative kiddo. Posing among posies wasn't an ideal activity when there were gibbons and meerkats to be seen. (And, I do realize he is not posing in front of posies here. It was for alliteration's sake only.)

Beck was absolutely beat afterwards. We were too :)
I hope you are having a gorgeous Monday. I am off to the dentist at 3:15pm (and I HATE the dentist passionately) and am {gulp} bringing Beckham along with me. This will be a treat for both of us. In the most sarcastic way possible.

Friday, April 9, 2010

Friday Happies

We were at my parent's house last night and Becks was getting the biggest kick out of running around the corner of this couch, to which we greeted him with mass applause and cheering. Thus, he repeatedly performed over and over and over again. He thought it was hilarious. As did we, the ever-obliging peanut gallery. Anything to see that toothy grin. {Some shots are a bit off, as it was difficult to catch him on the move.}




Also, do you not love his Kelly's Kids leprechaun overalls? Thrift of course - $1. Love it.

Lastly, I am on spring break with an arsenal of ambitious DIY projects to complete over the next 8 days. You know I'll be taking pics to show you the play-by-play. Happy Friday!

Thursday, April 8, 2010

Past Week...

I know, I know... I am slacking.  Sorry.  We have been very busy and I've had some other things going on that has taken up all my time and energy :) Forgive me.

Tripp is doing well.  He absolutely 100% rotten and we are starting to see that more and more everyday.  BUT that's okay.  He deserves to be rotten.  He has started the "fake" cry (or in his sake, the "fake" noise from his trach).  It is so funny.  He doesn't even really want to sit in his chair anymore.  And if we clap our hands like we are going to pick him up, he immediately stops fussing and starts smiling so hard he shakes.  It's cute... but could possibly get old pretty fast if I have to carry him around all day.  I've been waiting almost 11 months for him to reach up like he wants me to hold him... and now we will see how long it stays cute before I go crazy.  Haha.

We have been trying to get out a little more. We went to LaCarreta with my parents and he was SO good.  He sat in the high chair the entire time and played like a big boy.  Except as soon as we got home, he was so dry in his trach that he was pretty close to turning blue again.  We got home just in time.  I love taking him out places, but he can't tolerate his HME, so he dries up so fast.  And also, the idea of him getting an infection somewhere makes me totally freaked out.  BUT, we also need some normalcy, too.

Tripp has been a little HAM lately.  He's doing so many new things everyday and getting to be so much more fun.  He loves his Jeep walker now and can push backwards in it.  He shakes his head "yes" and "no" and shrugs his shoulders to say "I don't know?"  Well, at least WE say that's what he means :).  He is moving his lips up and down like he wants to talk, but nothing comes out.  He is using his hands SO well and reaching and grabbing for everything in sight... including us.  He LOVES to be outside and has gotten in his swing a few times this past week.  Except we have to worry about the pollen here.  It has been SO bad this year.  I worry about his allergies but also something getting in his eyes and messing things up again.

His eyes have been doing really well.  He still has the contact in and we are planning to take it out next week and either replace it with another one or leave it out if everything is healed.  His ears have really been bothering him, though.  He rubs at them constantly and is beating up his face again... it just started looking better.  We are thinking about going ahead and letting the ENT put tubes in his ears.  He has fluid in his ears and pretty much always has... and he will be prone to getting the fluid until about 4-5 years old she said.  And it's not infected, so the antibiotics won't help.  She said it's probably just causing a lot of pressure, which could be causing the pain.  So I think I am going to see her again on Friday and let her check his ears again... and then we will decide from there.  I DON'T want him to have to get put under anesthesia again... but I also don't want him to be in pain anymore either.  And the good thing is that he won't have to be intubated because he already has the trach and they won't have to start and IV she said.  AND I'm pretty sure it will be an outpatient surgery so he won't have to stay in the hospital unless there are any complications.  So we will see...

Please say some special prayers for Jonah tonight.  He caught a virus and has stopped eating well.  He is losing weight and his blisters are looking worse because he's not taking in the nutrition he needs to grow and heal.  I talked to Patrice today and my heart breaks for her.  It's such a hard decision to have to make (a G-tube or not?).  Please pray that she and her husband Matt will have the strength to deal with whatever comes along... G-tube or not.  No one understands having this burden unless you've been there.  It's such a tough decision to make because you want to do what's best for your baby... but when and how do you know what is really best?  And how long do you wait?  Patrice, I love you girl.  You are such a wonderful Mommy and I know that whatever happens through all of this, you will do what you think is best for Jonah.  I'm here if you need me!

My "family" at North Oaks Rehab hospital (where I used to work) sent me a gorgeous basket filled with all kinds of great things.  And each person left me their own special little note.  It was SO sweet and made me miss all of them so so much.  Thank you, guys!!  You totally made my week!  I would not trade staying home with Tripp for one minute, but I miss all of you so much.  Thank you for thinking of us and for all of your prayers!!  Love you all!!

Here are some pics from the past week!





























Love,

Monday, April 5, 2010

The real {long} account of the mouse.

Saturday morning I decided to rise before the boys to get a head start on some spring cleaning, brew the coffee, and ultimately enjoy the quiet before our Saturday truly began. Quickly realizing that our sugar dish was a little low, I decided to root through our pantry in search of a half-full bag that I just knew was lost in the clutter on the floor. Clutter might be putting it mildly. Let's just say there were several half-full bags of various baking goods haphazardly strewn about, creating a large mound of forgotten surplus. There were probably 3 bags of flour. Like I'm The Pioneer Woman or something and need 15 pounds of flour on hand on any given day.

So, anyway, I'm searching for the sugar, and coming up with a Halloween candy basket, powdered and brown sugar, more flour, some toothpicks, and STOP THE WORLD something THAT MOVES WHEN I TOUCH IT.

A mouse you all!!!!! It was unmistakeably a mouse!!!!! And I TOUCHED IT.

When my brain registered the fact that I touched a MOUSE I screamed the loudest, most girliest scream I could muster and immediately squealed B, WE HAVE MICE!!!! With my skin crawling, I managed to dash to the living room and onto the couch (pulling my legs up of course), and sent B in the direction of the kitchen.

So, he headed toward the pantry, fully prepared to deal with our rodent visitor. I took up residence on the dining room table, newly clad in my Ugg boots for good measure, able to witness the disposal of this disgusting critter. Just writing about it, give me the heebie jeebies.

There I sat as B sorted through the floor of the pantry, scared out of my mind. I don't really think he had a plan, other than to be my knight in shining armor and locate the mouse. My plan was to stay out. of. the. way. {Sidenote: I can watch the scariest of movies, but -gosh darnit-I cannot cannot cannot handle critters of any kind - especially IN MY PANTRY. That is WAAAAAY scarier.} After tossing a couple random objects to the kitchen floor, out scurries the mouse HEADED IN THE DIRECTION OF MY BEDROOM. I scream again. Like a girl. And B laughs and scolds me for being loud enough to wake Beckham and the neighbors. I am about to puke with fear. Visualize the-squirrel-in-the-Christmas-tree scene from Christmas Vacation and I am the grandma passing out on the floor. At least B was channelling Clark and not Uncle Eddie, though a dickey really would have added some much needed comedy to the situation. Anyway.

By the time B made it to look around outside the kitchen, Mickey was long gone, and I was FOR SURE he was either in Beck's toy bins, the inside of my shoes, or in the sheets of my bed. Mostly, I hoped my Fairy Godmother bippity-boppity-booed him back into Cinderella where he belonged. FAT CHANCE.

Of course we couldn't find that fast little guy, and I continued to wear my Ugg boots during the day (despite it being 70 degrees) just waiting for him to dart out across my feet. We cleaned out the bottom of ALL of our closets, and luckily found no droppings or remnants of this mouse or his mouse cousins. We obtained some mouse traps and put one in the kitchen, the living room, and beneath our bed.

Fast forward to 12:30am.

I am in bed, reading the latest on Young House Love, and B is snoozing on the couch in the living room. Naturally, I checked all of the traps before I got in bed to assure that they were still in place and prepared to do their jobs if need be.

Well, need be you all, need be INDEED.

All of a sudden I hear the SNAP! of the trap BENEATH MY BED. BENEATH MY BED. BENEATH MY BED.

I was terrified. I couldn't even move. It took minutes for me to find my voice to holler for B. Because that rat wasn't dead as far as I knew, and was likely flopping around under me trying to climb up my sheets and onto my face. So, I finally yelled for B, who responded by saying What? and then apparently falling right back to sleep. I spent another three minutes trying to produce enough saliva to rid myself of dry-mouth so I could yell for my husband again. You have to understand, I WAS ABSOLUTELY PETRIFIED. This was a fear like no other. As I waited for B to come, I pulled the sheets way up over my face so that only my eyeballs were showing. Because, of course, that is the way to protect yourself from a dead mouse under you bed. That and Ugg boots, which were unfortunately located in the top of my closet at this point.

B finally comes and I mouth the situation to him as he peers through the door. I didn't know if speaking too loud might bring the dead mouse back to life. Wide-eyed at my announcement, he comes into the room and looks cautiously under the bed. He confirms what I had heard ten minutes earlier, and I make him get my boots so that I can move. I put them on under the covers, and remained in bed until B exhumed the body. I finally mustered up enough courage to get out of bed after he disposed of the remains, and then refused to leave B's side for the next 20 minutes while he cleaned under the bed and reset the trap. Lord have mercy, it was the scariest hour of my life.

Our traps have to yet to catch any other mice, but usually where there's one, there's more. Which is completely disgusting and makes me feel dirty. Which I'm not. And our house isn't either. We just have good mice food, I guess. Regardless, I still get the chills thinking about it, though I've moved beyond wearing my boots around the house. Except when I go in the basement, where I'm sure an entire mouse compound exists.

Oh, gosh, I hope not. Grrrrrrrrrroooooooooooooooooooos.

This post is NOT about my Easter mouse. But the next might be.

Did you have a hoppy Easter? We had more of a mousy Easter, but that is neither here nor there. Well, actually it is. I will just save that story for another post.

Becks started off Easter morning with a sugar cookie as big as his head. Purple sugar, no less. Only the best to celebrate our Savior's resurrection.
Then we all dappered up and headed to church. You have to use a word like dapper when you dress in seer sucker and wear Docker's. It's a rule, I think.
'Scuse the squinty eyes. Of course it had to go and be all pretty and sunny yesterday, so I had to wear a new sundress WITHOUT tights and the sun reflecting off of my ghostly legs was too much for me to handle. (Note to self: spray tan before wedding in two weeks.)
After worship, we headed to Nana & Papa M's house for Easter egg hunting and more sugary treats .
Obviously, Becks was pretty pumped.


Then we headed waaaaaay across town (2 miles) to Nana & Papa K's house for more Easter egg hunting, sugary treats, and Easter dinner. It should be noted that Beckham thought that everything that was inside the eggs was edible, including this rubber fish. He would "taste" everything after smashing the egg on the ground.



It was roughly 3:45pm-ish when the little man could take no more, and Aunt Aubz and Dino (otherwise known as Danielle if you don't understand garbled 2-year-old English) took him on a walk to put him out. (Forgot the pack-n-play! Doh!)




After a brief reprieve and a couple matches of cornhole, we went home so that the men could do manly things for the rest of evening. Fortunately, their manly activities involved only cutting the grass in unison and not beer and women.

And sadly, last night was the last time Becks would get to play in his supersize sandbox. As of lunchtime, it was no more :(

Have a mouse-free Monday!

Thursday, April 1, 2010

I scream, you scream...

It was a Graeters night for Becks.


And a nice, long walk for momma and dada.

Elena's Blueberry Pie ice cream is a great way to end a Thursday.


Oh, boy. This is a glimpse of what we're in for.

T-R-O-U-B-L-E.

Have a Good Friday {wink, wink}.