Thursday, April 15, 2010
Room Redo
Live. Laugh. Lovehandles.
Please tell me there's other women out there who buy things they want to fit into someday. Or am I completely ridiculous?????
Wednesday, April 14, 2010
It's all about the process...
We should insure these hands ;)
Then I whooshed him off to the tub. And hung his masterpiece in our living room. The perfect punch of color and kiddo artistry, if I do say so myself. And how cute is that little half-handprint in the middle? Love it.
PS. As a parent and teacher, I have some words of wisdom to offer you: It's all about the PROCESS. Not the PRODUCT. This means, let your child enjoy art without the pressure of creating something beautiful/recognizable - because, often, it is beautiful/recognizable to your child. Children can be easily discouraged and frustrated when they're not achieving perceived "perfection" in their artwork (and in many other areas of life too!). Just let them enjoy being kids, and make the experience of art mean more than creating the next Mona Lisa :)
11 months, Surgery, Owen, and Pics
All went well today. We left the house at about 6:45 and got to the waiting room around 7:45. It was me, Randy, my mom and Randy's mom. Randy and I brought him back to the pre-op area. He was SO good... I know you aren't surprised, but I was just in "awe." I was proud of myself because the only time I started to cry a little was when I was holding him and the anesthesiologist said,
"Maybe we should give him a little versed because he might have some separation anxiety."
and I said, "Yeah that might be a good idea," and I looked at Tripp and said,
"Yeah, because you're gonna be sad if you have to leave Mommy, huh?" and he immediately started shaking his head yes.
It was SO freaken sweet. And perfect timing :)
Anyway, so they gave him the versed first and he was HILARIOUS. You could tell it made him so drowsy, but he was like a crazy man... that medicine wasn't getting him to slow down. He was smiling, pat-a-caking, and doing his cute little thing where we say "show us your muscles" and he holds his arms out wide and squeezes his whole body until he starts shaking. He was absolutely a little precious angel.
The procedure took about 30 minutes (the whole thing) and then we went back to wait for him to wake up. That's what took about 2 hours because the little stinker didn't want to get up. They had drugged him pretty good, though. But he looked GREAT when we saw him. Very, very comfortable.
While he was under, before they did the tubes, the eye doctor took out his contact and checked his cornea and his eyelid. He put a new contact back in because he said that the eyelid looked about 95% healed, but it still had a little raw spot on it and he didn't want it to scratch the eyeball again. So we will check it again in about 3 more weeks.
OK, so now for my RAVE on Ochsner hospital... I cannot say enough about how pleased I am. The doctors are one of a kind. Every single doctor Tripp has been to has gone above and beyond to help him. The anesthesia team has taken EVERY precaution possible to protect his skin. His skin has looked absolutely beautiful every time he has come out of surgery. The nursing staff has been so helpful and so understanding of everything. They take a step back sometimes and let me step in... which I like because I know him the best. If I was in that position as a nurse, I would do the same. Just EVERYONE was SO nice today... from the lady at the front desk who checked us in, to every doctor and nurse and anesthesiologist. It was nice. It felt good.
So.... GET THIS: There was another Junctional EB baby born at Ochsner hospital about 5 weeks ago. I know.... it's still hard to believe. His name is Owen and he is just plain beautiful. He and his Mommy and Daddy (Katie and Allen) have been through some really rough times these past weeks. Owen is still in the NICU at Ochsner right now, but is starting to improve and may be able to go home soon.
What are the odds that there are two Junctional babies in the same state that live about 30 minutes apart?? The geneticist told us Tripp was one in 2 million... so really that would mean there could be about (technically- 2.5) babies in Louisiana with JEB. I mean, it could happen... well, it DID happen.
I got to meet baby Owen for the first time yesterday. I hurt for him and his family SO bad because I know exactly, EXACTLY how they feel and what they are going through. I brought them a bunch of supplies and diapers and other things. I just want to do more. They are such a beautiful family. And I know that Owen is in good hands after meeting his amazing parents. Please keep Owen and his parents in your prayers through these tough times. They are coming to our house tomorrow to watch a bath and dressing change before they bring Owen home. They need your prayers! Thank you so much!
Here are some pictures from the recovery room and then later on today.... (and some from yesterday's walk to the snoball stand down the road!)
Tuesday, April 13, 2010
Nom Nom Nom
1. Ask mommy for muffins.
4. Add blueberries. Taste those too.
5. While mommy insists on taking more pictures, taste batter again.
DIY Floor Lamp
3. Spray paint base white. Forget to also spray paint finial (which I end up doing a shoddy job at later because I want to see finished project).
4. Gather materials for recovering shade. Fabric was purchased at Hobby Lobby with a 40% off coupon :)5. Clip off bead-fringe. Make mental note to vacuum before Becks wakes up from nap. Anything small and shiny is always appetizing when you are almost-two.
6. Cut and rip off old shade fabric. Much trickier than it looks.
7. Take picture of bare-bones shade.
8. Devise plan for recovering shade. Reread YHL's how-to post, and realize they recovered a drum shade. Much easier. Hmmmmmm.
9. Begin chanting The Nester's mantra: It doesn't have to be perfect to be beautiful. It doesn't have to be perfect to be beautiful. It doesn't have to be perfect to be beautiful...
10. Eyeball measurements and cut rectangular shape of fabric. Start hot-gluing with little clue how the end product will turn out.
11. Change method to cutting out pieces of fabric that look like this instead of rectangular:
12. Continue hot gluing with no rhyme or reason, unable to match the pattern or seams up perfectly. Think Who cares?
13. Finish covering.
14. Snip and glue excess fabric.
15. Cover seams with black ribbon.
Monday, April 12, 2010
Tube Surgery
Also, she looked down his trach and said that the little sore that he had there before from the longer trach that was in has gotten bigger and that's why we've been having some trouble with the trach. He's having trouble getting air in because the sore is restricting his airway more. So she started him back on the higher dose of steroids and tapering them down again. Hoping that will help shrink down the sore. I'm also giving him nebulized steroids to see if that will help as well. We are going to go back tomorrow and let her check the sore again to see if it went down at all before we bring him into surgery. She said he can't go in to surgery breathing like he was because the anesthesia team would have a heart attack!
But he's such a little trooper. You would never know by the way he acts that he was struggling to breathe. He's still all smiles. But he is pulling at those ears so much that he's tearing up the sides of his face. Hopefully the tubes will make a world of difference and he won't be pulling at those ears. The surgery starts at 8. We have to be at the hospital for 7. So please say some extra prayers for him on Wednesday morning. I will try and let you know how everything goes with his trach tomorrow after our doctor's appointment and let you know if the surgery is still going to happen for sure.
Also, he was supposed to have an appointment tomorrow to take his contact out and either leave it out if it's healed or switch it out with a new one. Well, don't you dare think I'm going to put him through two traumatic events in one week... SO I called the eye doctor and she said that they could change it out (or check and see if it's healed) while he's under anesthesia so that it won't be as traumatic for him. Killing two birds with one stone... I know, so smart :)
SO, please give offer up some extra prayers for the little man this week :) It's gonna be a rough one.
I'll let you know how things go!! Thanks again for all your love and support!
Here's some pics :)















