Goooo Saints!! Hey guys. Things are going okay. Today was a little better than the last couple of days. He is still just so miserable from these stinkin sores in his mouth. So the latest is: I could not get back in touch with the dentist we saw at Children's hospital, so I took it upon myself to e-mail the dentist in Cincinnati yesterday. She e-mailed right back and gave me her cell to call her at home... she was SOO incredibly nice. She said she was going to try and get in touch with the dentist here and let me know something back. Meanwhile, Tripp's pediatrician was trying her best to help, too. So she got me in touch with another dentist from LSU that works at Children's hospital also. So to make a looooong story short... something is finally getting done. Tripp has another appointment with this new dentist here on Thursday, and then we will see where we need to go from there. If they talk together and decide his mouth is bad enough to take the teeth out, then we will have them taken out. The Cincinnati dentist said that she would recommend pulling the 4 top and 4 bottom but trying to cap the molars instead of pulling those. 'Sigh'... I know, poor kid. Just when we think that things are starting to get better, something else comes up. AND NOW, I think he might (might) be starting to have some problems with his eyes. Go freaken figure. Corneal abrasions is common in EB, and it seems like Tripp is trying them ALL out. Now I don't know for sure, but he's been doing some really weird things with his eyes. First of all, he is rubbing them like a maniac! They've been red in a few spots and really watery. Sometimes it seems like they get stuck shut and he can't open them, he gets really really fussy and it lasts like a few minutes, then he seems okay. But he's been doing that pretty often. So if it continues a lot, then I guess we will go ahead and see an eye doctor, too. But right now I am concerned about his mouth the most. Poor, poor baby. That's kind of the reason I haven't written too much lately. I didn't want every post to be negative and depressing. Because that's kinda been my mood the past few days. I just want his pain to go away. I can handle all that I need to do to take care of him with a smile on my face... but it's hard to smile seeing him in so much pain all the time. And I'm not a big believer of all kinds of medicine, but I'm still giving the Motrin and Tylenol rotated around the clock.
On the up-side, he is one AMAZING child. He's now grabbing his sippy cup and biting it with his teeth. I don't know HOW he is able to do that. I wish I could get a close up picture of the inside of his mouth. I put ice water in the sippy cup, so maybe it just feels good in his mouth. I don't think he's sucking, so I don't know if he's actually getting any water, but he likes biting it. And I love when he can get it to his mouth :)
And did I mention how much he LOVES his Daddy. I think that quality time really did him some good. When Daddy comes home from work, it's like he's a little puppy dog wagging his tail. He moves his whole little body. SO cute. He'll do it for Mommy occasionally... but I have to act EXTRA silly. All Daddy has to do is talk. Ha.
So his new changing table is pretty cool. Aunt Davi and Uncle Ricky brought it over Sunday. Aunt Davi went and got the table and Uncle Ricky finished it in ONE day. Pretty awesome, huh? It has a lazy susan on top so I can spin him from side to side. And it's tall enough so that I can store his supplies underneath and hide them so that his room can fit his toys again. Here's the new table.
Storage!! Yay!
This material is just temporary until I find one I really like and someone who can make me some little curtains to cover the bottom. And I have to make some covers for the lazy susan so I can just take them off and wash them.
And here are a few more random pics..
Look, Ma... NO HANDS!!
This was his "had to get a shot present..." I really think he's thinking...
"THIS is what you call a PRESENT?? A scary, singing duck?"
He wasn't impressed... as always.
This is by far our favorite thing!! He always has just ONE leg up in the air.
Whether it's just diaper change, or bath, or whatever. Haha....
"Chicks Dig Scars" ... You bet they do buddy!!
(check out the monkey's band-aid!)
"He said, 'If you listen carefully to the voice of the LORD your God and do what is right in his eyes, if you pay attention to his commands and keep all his decrees, I will not bring on you any of the diseases I brought on the Egyptians, for I am the LORD, who heals you.'"
- Exodus 15:26
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