Hey guys. Quick update because we had a really hard and busy day. Tripp is already sleeping so I need to go to bed. We went to the ENT today and she looked down his trach and said that the blisters were all around the outside of his trach in his throat. THAT JUST PLAIN SUCKS. There's really no other way to put it. Sooooo, she put the longer trach in and it bypasses the blisters but he is still sucking up the side of his throat when he breathes. So we will have to wait and see if the longer one makes new blisters and if the old blisters heal by that time.... Don't ask me what we do if they don't heal or get worse because I have NO clue. He's still on a pretty good dose of steroids everyday and the ENT started him on a high dose of Pulmicort, which I give him with the nebulizer (the breathing treatments). So we will see if that helps with any swelling he might have. ?????? Anyway, we came home and I was pretty upset because he wasn't breathing good and he was miserable.... but as the night went on, he started feeling a little better. So please say some prayers that things stay okay. It is so hard to describe how it feels to see him struggling to breathe and in so much pain. We skipped bath today so we didn't get him anymore worked up than he already was! OK, going to bed. Will update again as soon as I get a chance. Thank you so much for all of the support. It is VERY MUCH needed.
Pics from Sunday's bath:
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