Sunday, February 28, 2010

Picky Picky

The above look absolutely epitomizes this stinkerpants' attitude toward nutrition lately. I commiserated with Kate, as she recently posted that her little peanut was going through the exact same thing: a food boycott.

I have no idea what to do, other than to give him lots of options and hope that he's getting all the vitamins and nutrients he needs from a couple bites of cheese, a quarter cup of yogurt, and a nibble or two of a waffle. And the ocassional Oreo cookie - which he has absolutely no problem eating. I should also note that the only milk he wants to drink is of the chocolate variety.

As with everything at this age, I just keep thinking this too shall pass (i.e. it must be a big, fat PHASE). So, for the time being, even though he'll keep shaking his head and verbally opposing almost every option I offer (yes, he says no quite often these days), I rest easy in the fact that his cheeks seem to be maintaining their chipmunky-ness and his energy abounds. His diet can't be lacking that much.

And, again, there's always Oreos.

Friday, February 26, 2010

Follow Friday!

If you're looking for some new BFFs (blog friends forever), go check out these lovely ladies...

For Laughs...

For Entertainment...

For Home Decor Advice...

For Tales From Motherhood...

For Style...
- Pammycakes (style/dress)

Thursday, February 25, 2010

Quarter Life Crisis

I might go out and buy a convertible VW bug today.

Or listen to Miley Cyrus and Taylor Swift on repeat and sing loudly at the top of my lungs.

Or buy a Seventeen magazine. Or even a Cosmopolitan.

Or see if my girlfriends want to come over for a slumber party and eat raw cookie dough straight from the bowl.

Or purchase a really trendy ensemble from Charlotte Russe or Forever 21.

Because today it was made blatantly obvious that I am, in fact, no longer 21. Or even close to it.

After doing some spring cleaning today from our closet, I came up with 12-15 items to take to Plato's Closet to resell. There were several dresses and tops, many which I've worn in the past five years at some point, however I hadn't worn them this past year at all so I decided it was time to part with them.

The 14-year-old girl (exaggeration) went through my basket with her discerning eye and then returned all but two items.

Her explanation: "Well, we could only accept these two items. You have really nice clothes, but your taste is just too OLD for this store..."

I half-smiled, half-scowled at her, snatched up my almost 2-year-old, accepted the measely $7 she offered and took my basket of OLD clothes to my car where I proceeded to crumple into a big old pile of 27-year-old depression. Well, it wasn't quite that bad. But almost.


The State of House Address

Our house seems to be in a perpetual state of remodel. Don't get me wrong, it's absolutely wonderful to have the opportunity (and spare cash!) to do some upgrades, but the process can be excruciating. I adore the floors and the fact that we were able to sell our furniture quickly, but we now have no where to sit and have spent the past four nights going to bed at 8pm because, well, the only TV in the house is the 19 incher at the foot of our bed. Not pictured. Purposely. In real life (we're living in fake life right now, I guess), we don't even keep a TV in our bedroom. Takes up too much space in our petite chambre and detracts from the serene ambiance. Nothing like a big black eyesore to get you in the mood, right?

So, yesterday, I was determined to return at least one room of our house back to its full functioning state. Our bedroom was the only room that qualified since we have an adequate, though minimal, amount of furniture, plenty of accessories to play around with, and matching bedding and curtains (though my husband would beg to differ). They match in my opinion. We actually bought a new bed this weekend that fit in perfectly with the curbside treasures already in our room.
Sidenote: Our mattress has been through various residences during our brief marriage. First, it sat happily upon an enormous, ornate wood bedframe that pretty much took up the whole bedroom. Then, when we moved upstairs, we gave the bed frame back to my parents (original owners) and situated the mattress atop a hollywood bedframe, 2X4s, and cinder blocks. Classy? No. Resourceful? Yes. Lastly, when we moved the bedroom back downstairs in September, we just sat it upon the hollywood bedframe and said to heck with it. Then, this past weekend, we bought a bed. I wanted white and told B to pick out whatever style he liked. I like what he chose and it works beautifully.
So, now at least one room in this house looks put together and complete. Minus a rug, of course. {We can't put rugs on the floor for another three weeks due to the curing process of the floors.}
And, if you look hard enough, you might find my new blue cake plate, serving as a lamp plate instead. I needed to even out the height of them lamps until I buy the match to the lamp to the right. It works, right?

I do have an issue that needs amendin' right quick. What to do with all of this????

They all used to live happily beneath our coffee table or stored in our old TV stand. Now they're all looking awful junky on the floor in the dining room just begging for a new home. How do you creatively store toys? If anyone has advice on furniture that would hide store Becks' things, do tell!

PS. I'm on Snow Day #10 here today! Ah! School until JULY. And there is NOTHING on the roads. Ridiculous.

PSS. We are hunting ravenously for new furniture, but nothing seems to be made to fit into small homes anymore. EVERY sofa we've seen is oversized, overstuffed, and reminisce of our old furniture. Suggestions welcome.

Wednesday, February 24, 2010

Snuggling and More Snuggling

This is Becks eating the aforementioned Walmart Great Value Mountain Trailmix that you should NOT run out and buy right now if you're on a diet, hate the chocolate-peanut-raisin combo, or don't like getting a good deal. Because this stuff is addicting and you will eat a WHOLE bag within 48 hours of purchasing it, necessitating a trip to Walmart immediately. (PS. Who knew necessitating was a word?! Thank you, spell check.)

We've been doing a whole lotta this lately. Because my little pumpkin pie insists upon being thisclose to me at all times. And, because I've come to the conclusion that it's a "phase," I'm going to suffer through the snuggling. Yes, that was sarcasm you were sensing. Count your blessings, mamas.

When we're not snuggling, Becks is doing this. A lot. (Repeat to self: phase phase phase phase.) Or, he could be crying because who in their right mind would opt for this putrid green color on such a great magazine/book basket? Since I knew such an ugly green basket would likely sit upon the shelf at Goodwill basking in its ugliness for an eternity, I decided to buy it and console it by telling it I will spray paint it a lovely shade of white here in the near future. And give it magazines and board books to hold and love on.

I also picked up some other pieces thrifting in the past two weeks. The lamp was our's already, but the table ($15), lovely blue cake stand ($5), and book basket ($3) are all new additions. I can't wait to show you how I'm using the cake stand! Watch for a future post :)

Tuesday, February 23, 2010

Fundraiser, New toy, Jonah's Auction, Britt's wedding and BED...

Hola!  How is everyone??  Sorry I must be watching too many Spanish cartoons lately...  We are still doing  well here.  I've gotten a humidifier for just about every room in the house and try to keep them running all day (but that's pretty pricey using distilled water!!).  But is seems that it might be helping a little.  His secretions are just SO thick and I am still having trouble with the size of the suction catheters.  The 6F is too small and doesn't really cut it and the 8F is too big.  Why there is not a 7F I will never know.. ha
Tonight was Tripp's fundraiser put on by the PhiMu sorority of Nicholls State University.   Anyone who went to eat at the Chili's in Houma, Laplace or Thibodaux and presented Tripp's flyer donated 10% of their total bill to his fund.  Isn't that just amazing?  I think there was a pretty good turn-out.  Thank you so much to everyone who went to eat for Tripp tonight.  You're meal will help pay for his doctor visits and supplies.  Thank you to everyone who was associated with putting together this fundraiser and to everyone who helped spread the word.  There were people that I do not even know who were e-mailing me for flyers and posting the event on facebook and even people sending checks for the fund!  Your support is very MUCH appreciated.  I just hope one day Tripp can see how many people love him and are praying for him!  It's so touching.

So today we woke up and were going on with our regular routine and the UPS man knocks on the door. Well, it wouldn't be a normal day over here if the UPS man didn't stop at our house (I think he gets aggravated at all the boxes that come here and may or may not have hinted that before).  We are always getting him some type of supplies for him... wound care supplies, suction catheters, g-tube feeding bags, etc... So I was totally expecting suction catheters because it was about that time... well I opened the box and it was a really cool TOY!!  YAY!  It's not everyday that a toy comes in the mail!  And what's better than expecting suction catheters and getting a toy instead.  It was from Diane Rabalais ( the nurse from North Oaks who helped deliver Tripp).  She had a really nice card that said she read the blog and heard us singing "Head, shoulders, knees and toes" and her daughter had a really neat toy that sang it.  SO she bought it for Tripp.  Once again, people just amaze me.  Tripp LOVES it.  It's the perfect height for him to sit on the ground and just bang the heck out of it.  He sat on the floor with that toy today longer than he's EVER sat.  BLESS YOU DIANE!  He was actually preoccupied for a few minutes!!  I had to lysol the toy after he finished because it had blood all over it from his little fingers from banging on it so hard! haha.  Here he is with it... Thanks Diane :)

Tripp's skin is looking about the same...  his face is looking better.  Thank God.  He is still rubbing his eyes a whole lot and still has blisters and some raw skin hanging from the corner of both eyes.  And he has those scabs on his face that just don't want to heal.  I don't know if it's the depth of the wound that makes some heal so fast and some NEVER heal.  I have no clue.  Or maybe it's just that some will never heal.  The ones on his legs have looked exactly the same for months.  They're pretty deep though... and he kicks his little legs like there's no tomorrow.  But I pad his legs with about 4-5 layers of stuff to keep new ones from popping up.  And it works, there hasn't been a lot of new ones... one here and there.  But ugh... his fingers.  I'm just at a loss.  I am absolutely NOT wrapping each individual finger... not because it's hard on me, but because he LIVES to hold and play and use his fingers... that's pretty much all he can do.  And I've wrapped the little sore that's been on his foot for months and it just won't heal either, so I'm thinking the fingers will maybe just come with time... A LOT of time.

Jonah's Auction is up and running!!  All the proceeds from the auction are being donated directly to Debra to help find a cure for EB!  Please, please go check it out.  They have some really great stuff and it's for a great cause!! And it's to celebrate Baby Big Boy Jonah's 1ST BIRTHDAY!!  HOW.  Freaking.  EXCITING?  Really, go check it out... and BID!! It will tell you how to bid on the website!

OH I so totally forgot to tell you that my sister (Tripp's Nanny) is getting MARRIED!! IN MAY!!
Very soon, I know... but her fiance' lives in Minot, North Dakota, so a long engagement isn't really fun.  Anyway, she will be 28 hours away :( I know.  I will try not to focus on her leaving yet and only one the exciting wedding day (May 22!)  I really don't think it's hit me, well I KNOW it hasn't hit me yet that she will be leaving and be so far away.  Ok, so I'm really NOT going to think about it.  Anyway, I have 3 months to shed some pounds... and tone up a bit.  So I need a little motivation.  Just not sure where I will get it.  I've been eating better this past week mainly because there are no groceries in our house because we haven't been grocery shopping in ages except for things we need here and there.  My mom ordered us an elliptical so we are going to start working out as soon as it's in.  I mainly need to work out to get a little energy back and so my body won't feel so stiff all the time.  Ok I'm starting to bore myself.. sorry.

It's WAY past my bedtime and Tripp finally just fell asleep watching Mickey Mouse.  He LOVES his bed.  Thank God.  What 9 month old wouldn't love their bed when they're propped up on a boppy and several pillows with soft blankets surrounding him, watching Mickey Mouse on his portable DVD player and chewing on his favorite toy (a burp rag).  Judge me if you want.  But the child deserves to be rotten.  And trust me, the DVD player only occupies him for a short time...

One more thing... I want to share some scriptures with you that Jen Burns shared with me that I thought are SO fitting.  And there is nothing I love more than reading scriptures that suite our situation (It just makes it a little easier, ya know?) Thanks, Jen.  You may have saw them on caringbridge, but I wanted to post them here, too.

Revelation 2:12
He who has an ear, let him hear what the Spirit says to the churches. 
He who overcomes will not be hurt at all by the second death.

Psalm 37:18
The days of the 
blameless are known to the Lord, and their inheritance will endure forever.

2 Timothy 2:12
If we endure hardship, we will also 
reign with Him.  (how cool is that!)

This is him waking up this morning... a hot mess as always!!
But he's always smiling!!

Quick Facts

  • My new favorite show is Kell on Earth. If I worked for Kelly Cutrone I would probably cry daily, but there is something I just love about her. Plus, maybe I'd have the chance to be friends with Whitney Port and be on The City. Just a thought.
  • Beckham is suuuuuuuper clingy. Like, if I'm not within six inches of him or holding him, he is alternating between screaming, crying, and whining. I'm going to chalk this up to him being sick and being with me for the past two weeks straight. That doesn't make it any easier to tolerate though. ETA: Just read this. Clingy is okay.
  • I'm completely obsessed with Walmart brand Great Value Mountain Trailmix.
  • Tonight, I am going to be scoring 4th and 5th grade Academic Team essays for three hours. Voluntarily.
  • Just thinking the word polyurethane makes me nauseous.
  • I should be decluttering the upstairs.
  • Also, I should be furniture shopping because, well, we still have nothing in our living room to sit on.

That is all.

Monday, February 22, 2010

Orange you glad you're a winner?!

And the winners are...


Yay! So excited for you both! You will loooooove this CD. Promise! And, if you didn't win, you can buy it right here! It will be the best $12 you ever spent on a kid's CD!

Email me your name and address at babblingabby(at)gmail(dot)com so I can forward your info along to Ross so you can get your CD. Congrats!

Oh for ratings sake!

So. Over. Twitter.

Tonight at least.

I could not get the page to refresh for the life of me and then it was taking eons to update my status so I quit. Kind of like Ali quit The Bachelor so she could pursue her career (i.e as the next Bachelorette). Just saying.

I really enjoyed The Women Tell All. Some highlights...
  • The drama was tangible. I could almost feel Rozzy's deathstare through the television. +12 for ABC.
  • The unseen footage that quotes several of the girls referring to Tensley's Disney-esque personality. Vienna saying that she dreams in cartoons was just plain hilarious. + 1 for Vienna.
  • I was glad Elizabeth admitted that her kissing rule was ridiculous. + 1 for Elizabeth
  • Jake's outfit being sterotypical Jake. - 2 for unoriginality + 2 for staying true to himself.
  • I just can't believe Roz. I can't. Something happened. Whether it was as dramatic as the network made it out to be is anyone's best guest, but something questionable happened between her and that producer. I mean, Ella called her out on it, for goodness sake. Ella! -20 for Roz. Own up sister.
  • I had trouble swallowing Ali's sencerity when apologizing to Vienna. For ratings sake, it was staged! She'll be the next Bachelorette. And I haven't even read Reality Steve for that one. {And, yes, I'll totally watch her and her yellow dresses take on group dates and fantasy suites. I can only hope Jake and Vienna drop in to help her choose. For ratings sake, of course.} -2 for apology +5 for choosing a non-yellow outfit and accidentally saying FART on TV.
  • I kinda like Christina and wish she would have made it longer, even if she did make parting gifts for the girls on Day 1. + 10 just cause I like her.
  • GWoww stayed true to her Jersey roots by rocking a sparkly purple number. +1 for wearing something I never would.
  • Also, -50 for Twitter. It still won't let me log on. 45 minutes later. Arrrrgh.

Sorry I don't have any fav tweets! I never recorded them before Twitter excluded me.

See you next week for #ATFT for The Final Rose Ceremony!!!!!

Lots to Talk About!

Hi guys!

I don't even know where to begin, we've been so busy! Becks is still sick. Dr. Google is thinking it is totally roseola since his fever has been so darn persistent and then yesterday he broke out in a spotty rash. It's fun being one, picking up every germ that crosses your path, no?
Also, my sister, Chelsea, and I had Girls Night on the Town last Thursday night. I had to chuckle when we called my other sister, Aubrea, to let her know we were missing her and she asked, "Oh, are you going out for dinner and drinks?" Ha! Silly girl. No, we're going shopping child-free! However, we did make the most of our time together and not only hit up some sweet winter-clearance sales, but also had fun snapping pictures in the trashiest outfits we could find. Meet our alter-egos: Jerilee and Bonnie-Sue. When they're not trying on denim tights, you can find them posted up at your local truckstop eating moonpies and flirtin' with the locals. Yee haw! (And, yes, if you're in the market for denim-looking tights, they're totally at NY&Co - on clearance, shockingly.)

This is what happens when you've been snowed-in for two weeks straight.
Jerilee. The superblond hair, no makeup, pasty skin really adds to the overall look.
Bonnie-Sue. No one pulls off the the faux silk, attached-pearl necklace look quite like you, sister.

And, then we tried on Derby hats. And tried desperately to look sophisticated. I failed. Chels looks rather darling.

But we didn't stop there. We would have got makeovers at the Chanel counter, but it was nearing 8pm and we turn into pumpkins shortly thereafter, so we opted to try on prom dresses instead. And, oh yes, we runway walked down the fitting room.

Wait? Do you smell that? YES, IT'S POLYURATHANE! We're hoooooooome!

Two weeks, two snow storms, and four coats of shellack later and we finally can sleep in our own bed and cook dinner in our tiny, outdated kitchen again! Yippeeee! We enjoyed our time with my inlaws immensely, but I was ready to come back to my own space. We still haven't found the perfect furniture yet, so our bedroom is currently serving as our living room too, but that's okay! I will post better pictures once everything is redecorated, but the new floors are a HUGE improvement over the old floors (which were 1950s originals, full of spots, stains, and scratches). FYI: Any spots you see are from the camera.
So that was the longest post over.

If you just looked at the pictures and need a cliff's notes synopsis, here's the gist of the post:
Becks has roseola.
Abby and Chelsea are complete dorks. But fun ones.
Snowdays make you crazy.
The floors are finally finished!

Can't wait to tweet with y'all tonight!!!!! I've been looking forward to it all day!
See you for #ATFT!

Friday, February 19, 2010

The many faces of our little HAM...

Tripp has been a complete HAM lately. He is SO rotten (rightfully so) and definitely knows that he has us wrapped around his little raw fingers. His smiles and facial expressions lately have been so so cute, I could just eat him up.
He had his upper GI done this morning and it was not as bad as I expected... because like I said, he is a complete angel. They put some Nestle Quick chocolate in his barium, I sucked it up in his syringe... and he couldn't get enough. He just didn't like the fact that he was laying down on the table and someone was holding him down. I don't know the results yet, so I will let you know when I know... BUT we also went to see the ENT while we were already at the hospital and she took a look down his airway again... and it looked GREAT!!! Praise the LORD. Thank you to everyone who has been saying prayers. They are obviously working! Please continue to pray that his airway can stay blister-free!

I handed out my first "Tripp card" today. It was perfect actually. This really nice lady walked up to us in the hospital and asked us if we were Christian. We said yes and she told us that she had a dream last night about a little boy with markings all over his face. She then asked if she could pray over Tripp. And I said, "Most DEFINITELY." Pretty cool, huh? I thought so. And I thought it was the perfect opportunity to hand her one of his cards. That way she can keep up with us.

I am so happy with the way things have been going the past few days. I just hope things continue to stay good and I hope we can find some kind of Happy Medium with his trach issues. My mom bought us a humidity detector (or whatever it's called) and I bought a few more humidifiers so we could have one in almost every room. So hopefully we can try and help all of his "drying up" issues.
We finally found a company who does Tripp's trach and G-tube supplies!! Thank you so much to everyone who tried to help us find someone. This company is local (Patio Healthcare) and so far has been AMAZING! The guy that came out to the house to bring his new equipment and supplies could not have been any nicer. Maybe losing the other company was a blessing in disguise... The other company was fine, but I feel so much better about the new one.

(OH, Don't forget to check out the blog below to find out about the local Chili's Fundraiser for Tripp!)

So here are a few pictures of today when we were sitting out in the lobby of the hospital waiting for our next appointment. He was CRACKING ME UP! And when I say he's a HAM, I mean it. I know these pictures are all the same, but that's why I called this "The many faces of our little HAM." He was surly putting on a show. When he tilts that head to the side and gives that little grin, it's like he's saying, "Mom, does this face make you want to give me whatever I want?" Yes, little buddy, it sure does!!

Believe it or not, these next pictures are him smiling.
It's his new thing. HILARIOUS.

And last, a little video of us sitting out in the lobby.

Chili's Fundraiser for Tripp by Phi Mu.

Hey guys!  Just wanted to let everyone know about the local upcoming fundraiser for Tripp.  The philanthropy head of the Phi Mu sorority at Nicholls State University e-mailed me a few weeks ago.  Their sorority does a fundraiser for Children's Miracle Network each year, but as Tripp isn't a part of that, they read his story and felt that they wanted to do their fundraiser for him.  (I know, .... so so nice.)  So they are having a "Chili's Night" for Tripp.  It will be held on Tuesday, February 23rd.  Anyone who presents his flyer to a Chili's in either Thibodaux, Houma, or Laplace will donate 10% of their bill to Tripp's fund.  Isn't that just awesome??  I will try and attach what the flyer looks like, but please let me know if you need a flyer to print out!  The girls have passed them out around Nicholls campus and around the Thibodaux, Houma, and Laplace areas.  Thank you from the bottom of our hearts to the Phi Mu sorority and everyone that is involved in this fundraiser for Tripp.  We are honored that you thought of our son.  

Thursday, February 18, 2010

I'm going to be a...

...Matron of Honor!!!!!!!!

So excited for you, Allison and Ryan!


Okay, so an update.

We're still out of our house, but the floors are officially refinished! They are still lacking toestrips, but that's okay. Because we can live in our house without toestrips. However, he smell of the polyurethane is still pretty strong, so we'll probably venture back home on Saturday to avoid the toxic fumes for as long as possible.

It's not snowing anymore, so that's a bonus. But Becks is sick again with some crazy virus that made him spike a temp of 104. Freaked. Me. Out. I hate when he is sick. I would have rather it been something curable like an ear infection or strep throat, but nope, it's a virus. A stinky old virus that has to run it's course. I always feel bad taking him to the doctor only to find out it's something viral. It makes me feel like I'm a hypochondriac. But, he's my first baby and I'm largely inexperienced at this sickness thing, so I guess until #2 we'll be seeing the doctor to alleviate my personal fears.

Well, I'm feeling pretty boring. There's nothing to really say and no new pics of my sick babe to post, so maybe I'll post more later.

And, in case you forgot, go win yourself a new kid's CD!

Wednesday, February 17, 2010

It must be the power of prayer.

So I want to extend a HUGE thank you for all the prayers for a little bit of sleep and my sanity back. Since Sunday night, Tripp has somehow slept better than he EVER has. I don't know if it was that I was at my wits end and he knew it (doubt it), or that I am not running his feeding pump (maybe his stomach was hurting), or the new trach, who knows... so I'm just gonna toss it up to all those prayers. I am forever grateful. Will it continue? Don't know, but every hour of sleep I get is a blessing. We are of course still having a little trouble with the trach, but I don't know if those issues are fixable at this point. We just take one day at a time. Some days are better than others... and I thank God for all the days, good or bad. But it's totally amazing what a little sleep can do. The first day after I slept I felt like a truck hit me, guess my body wasn't used to getting that much sleep. But I'm starting to feel a bit more rested and I pray it continues to get better (my eye bags are still there, but I think it will take a few weeks of sleep to get them looking a little lighter.. ha).

Tripp amazes me more and more every day. I just don't know how he does it. He is still not doing everything an average 9 month old would be doing, but he is totally not as behind as I thought he would be. It's very surprising, actually. He is using his hands and arms great and pretty much up to par. He grabs at EVERYTHING and it goes straight to the mouth. From what I can see and count, he has about 16-17 teeth... unless there's any I can't see. Crazy, huh? And I'm pretty sure there's some more coming in because he's drooling like a maniac. His poor little fingers are still raw and bleed A LOT. He will cry for a few seconds when he hits one on a toy and it's starts bleeding, then he's fine. I know, like I said.... he's amazing. The strongest little boy I know. As far as his legs and feet, he's FINALLY starting to put a little pressure on his legs. Yesterday in his walker, he started pushing backwards a little!!! YAY! I was so psyched... And, O MY GOODNESS.... his smile- is so darn precious I can't even control myself. He's so tired of me kissing all over him. And he'll let you know, too. When he's had enough kisses and "in my face" time, if you get too close he will fuss. And by fuss I mean you can just tell in his face he would be fussing... we can't hear anything but the trach noise. Which is really sad. BUT just the past few days, he has started moving his mouth like he would be babbling. And this morning, I could not stop laughing because every time I would start to sing, he would move his mouth like he was trying to sing with me. SO SO cute. And lately, when he gets really excited, he opens his mouth really wide and squeezes onto whatever is in front of him and you can see all his little teeth.
Here are some pics from the past few weeks...

Tripp and MeMe

First time big boy could sit up at the doctor!!

I told him one more scoot and he was gonna be off that chair!

I made Tripp his own "business cards" (ha) so that every time we go to the hospital or the doctor's office and people ask about him, I can just hand them a card and they can learn more about Tripp and EB from my blog and caringbridge.  I also put on there.  Because I know we tell people all about him, but when they go home, they're probably just thinking, "Oh, remember that poor boy with the bad skin disease?"  This way they can learn more about EB and maybe even help us spread awareness.  The more people that know, the better, right?



Here are some videos of the past few days.... PLEASE excuse my singing. I am not a professional. But Tripp likes it and that's all that matters.. ha.

Tripp singing with Mommy...

Here is Tripp so so happy in his walker!
Don't mind my mother, she had a frog in her throat.

This is him smacking his lips... something he finally just started doing.
If you listen close, you can hear it over Mickey Mouse.
(It may be boring to you, but I was about to cry because he never moves his lips.)

Tuesday, February 16, 2010